Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges

Mohammed Al Dubayee; Fahad Al Juraibah; Haifa Alfaraidi; Suliman Alghnam; Raed Aldahash; Najya Attia; Adnan Al Shaikh; Abdelhadi Habeb; Aida AL Jabri; Abdullah Al Zaben; Mohsen Al Atawi; Angham Al Mutair; Muhammed Alamri; Omar Aldibasi; Ibrahim Al Alwan; Amir Babiker

doi:10.24911/SJP.106-1715756287

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Online Publishing Date:
01 / 06 / 2024

Sudan J Paed. 2024; 24(1): 10-20

doi: 10.24911/SJP.106-1715756287

Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges

Mohammed Al Dubayee, Fahad Al Juraibah, Haifa Alfaraidi, Suliman Alghnam, Raed Aldahash, Najya Attia, Adnan Al Shaikh, Abdelhadi Habeb, Aida AL Jabri, Abdullah Al Zaben, Mohsen Al Atawi, Angham Al Mutair, Muhammed Alamri, Omar Aldibasi, Ibrahim Al Alwan, Amir Babiker.

Abstract
The Saudi National Diabetes Registry focuses mainly on adult patients. In 2020, the National Guard Health Authority (NGHA) launched the Saudi Pediatric and Youth Diabetes Registry (SPYDR), for children and adolescents with diabetes. We report on the first data and the challenges we faced during SPYDR initiation.
Patients were identified from the electronic medical records of the Saudi NGHA hospitals using International Classification of Disease (ICD-10). A trained coordinator verified the diagnosis and entered patients’ details into the registry and a random sample was validated by experienced endocrinologists. The data were analyzed according to patients’ demography, diabetes subtypes, duration, control, and complications. The challenges faced the team were identified and addressed.
At the time of manuscript submission, 2344 individuals were enrolled. Their mean age at diagnosis was 9.08 (±4.27) years and 1,136 (48.46%) were females. Of these, 91.3% have type 1 (T1D) and 6.4% have type 2 diabetes (T2D). The mean HbA1c was 10.45% (±2.36) and duration of diabetes was 5.31 (±3.05) years. The main challenges included COVID-19 pandemic, data validation and centers’ participation. However, within 12 months of initiation enrolled subjects matched the expected number.
Despite the challenges, the first step of SPYDR was achieved. The initial data confirmed that T1D is the commonest form of childhood diabetes, and the frequency of T2D is comparable to regional and international data. SPYDR provides infrastructure to data sharing and collaborative research; hence; we plan to expand it to enroll patients from other Saudi healthcare institutes.

Key words: Database, Diabetes, National Guard, Pediatrics, Registry, SPYDR, Saudi Arabia.

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Pubmed Style

MAD, Juraibah FA, Alfaraidi H, Alghnam S, Aldahash R, Attia N, Shaikh AA, Habeb A, Jabri AA, Zaben AA, Atawi MA, Mutair AA, Alamri M, Aldibasi O, Alwan IA, Babiker A. Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges. Sudan J Paed. 2024; 24(1): 10-20. doi:10.24911/SJP.106-1715756287

Web Style

MAD, Juraibah FA, Alfaraidi H, Alghnam S, Aldahash R, Attia N, Shaikh AA, Habeb A, Jabri AA, Zaben AA, Atawi MA, Mutair AA, Alamri M, Aldibasi O, Alwan IA, Babiker A. Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges. https://sudanjp.com//?mno=201711 [Access: June 21, 2024]. doi:10.24911/SJP.106-1715756287

AMA (American Medical Association) Style

MAD, Juraibah FA, Alfaraidi H, Alghnam S, Aldahash R, Attia N, Shaikh AA, Habeb A, Jabri AA, Zaben AA, Atawi MA, Mutair AA, Alamri M, Aldibasi O, Alwan IA, Babiker A. Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges. Sudan J Paed. 2024; 24(1): 10-20. doi:10.24911/SJP.106-1715756287

Vancouver/ICMJE Style

MAD, Juraibah FA, Alfaraidi H, Alghnam S, Aldahash R, Attia N, Shaikh AA, Habeb A, Jabri AA, Zaben AA, Atawi MA, Mutair AA, Alamri M, Aldibasi O, Alwan IA, Babiker A. Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges. Sudan J Paed. (2024), [cited June 21, 2024]; 24(1): 10-20. doi:10.24911/SJP.106-1715756287

Harvard Style

, M. A. D., Juraibah, . F. A., Alfaraidi, . H., Alghnam, . S., Aldahash, . R., Attia, . N., Shaikh, . A. A., Habeb, . A., Jabri, . A. A., Zaben, . A. A., Atawi, . M. A., Mutair, . A. A., Alamri, . M., Aldibasi, . O., Alwan, . I. A. & Babiker, . A. (2024) Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges. Sudan J Paed, 24 (1), 10-20. doi:10.24911/SJP.106-1715756287

Turabian Style

, Mohammed Al Dubayee, Fahad Al Juraibah, Haifa Alfaraidi, Suliman Alghnam, Raed Aldahash, Najya Attia, Adnan Al Shaikh, Abdelhadi Habeb, Aida AL Jabri, Abdullah Al Zaben, Mohsen Al Atawi, Angham Al Mutair, Muhammed Alamri, Omar Aldibasi, Ibrahim Al Alwan, and Amir Babiker. 2024. Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges. Sudanese Journal of Paediatrics, 24 (1), 10-20. doi:10.24911/SJP.106-1715756287

Chicago Style

, Mohammed Al Dubayee, Fahad Al Juraibah, Haifa Alfaraidi, Suliman Alghnam, Raed Aldahash, Najya Attia, Adnan Al Shaikh, Abdelhadi Habeb, Aida AL Jabri, Abdullah Al Zaben, Mohsen Al Atawi, Angham Al Mutair, Muhammed Alamri, Omar Aldibasi, Ibrahim Al Alwan, and Amir Babiker. "Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges." Sudanese Journal of Paediatrics 24 (2024), 10-20. doi:10.24911/SJP.106-1715756287

MLA (The Modern Language Association) Style

, Mohammed Al Dubayee, Fahad Al Juraibah, Haifa Alfaraidi, Suliman Alghnam, Raed Aldahash, Najya Attia, Adnan Al Shaikh, Abdelhadi Habeb, Aida AL Jabri, Abdullah Al Zaben, Mohsen Al Atawi, Angham Al Mutair, Muhammed Alamri, Omar Aldibasi, Ibrahim Al Alwan, and Amir Babiker. "Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges." Sudanese Journal of Paediatrics 24.1 (2024), 10-20. Print. doi:10.24911/SJP.106-1715756287

APA (American Psychological Association) Style

, M. A. D., Juraibah, . F. A., Alfaraidi, . H., Alghnam, . S., Aldahash, . R., Attia, . N., Shaikh, . A. A., Habeb, . A., Jabri, . A. A., Zaben, . A. A., Atawi, . M. A., Mutair, . A. A., Alamri, . M., Aldibasi, . O., Alwan, . I. A. & Babiker, . A. (2024) Establishing the Saudi Pediatric & Youth Diabetes Registry (SPYDR): initial data and challenges. Sudanese Journal of Paediatrics, 24 (1), 10-20. doi:10.24911/SJP.106-1715756287

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